Upsy-Downsy
Well life continues to be a real slog. Pain is constantly a problem and I regularly am unable to sleep because of it so it just gets worse. I feel like I'm being sucked down in this pain and insomnia whirlpool and I'm screaming to my doctors for help and they are too damn busy to pay attention. It's really frustrating.
The thing that has me really pissed though is my pain medication prescription went AWOL last week so now my doctor is refusing to mail it in the future. Instead, I have to ride the bus for 4 hours to pick it up in person. I'm going to try and talk to him about this next time I'm in there, but clearly that isn't going to help much. I'm also desperately seeking alternatives.
Not much is happening otherwise since I'm struggling just to keep myself fed and dishes washed. I am too tired and too sore to try it today so I'm going to try and do some laundry tomorrow. That's pretty much what my life has been reduced to.
I'm watching quite a lot of movies though and am making an effort to get reviews back on the companion page ~ view . read . listen ~. Talk about a backblog!
Robin's fine though he's bored and would love to get out for a walk or some serious play. I do throw the ball around inside the apartment for him as much as possible and he gets plenty of attention, but I think he'd really rather chase kitties.
The only other thing is I made a slight change with my meds earlier in the month. I picked the acyclovir back up since I had been having some horrible sores around my mouth pretty much every other week since I stopped it. So far the sores seem to be gone but I've noticed that the sweat attacks have intensified and I seem to be sluffing off lots of skin. I especially notice the later after showers and it's mostly an annoyance since it just leaves me feeling less clean that I'd like.
However the upside is that since getting rid of all the meds that were messing with my head I no longer have those horrible dreams and hallucinations. None. I mean, they have completely disappeared. It's really strange and I'm not really clear which drug was actually causing them since I'm still taking the most likely candidate.
This has lead me back to the untold problem of taking many different medications -- the unknown, usually untested world of drug interaction side effects. Yes, they do test drugs before allowing them to be released to the general public and they record all these side effects but there is almost NO TESTING of side effects seen when the drugs are combined with other stuff. I think this is where much of the problem lay in my past -- I don't think any single drug was responsible for any of the side effects but they all combined in this horrible morass of chemically induced problems. Talk about being caught in a web...
Never again. I don't care what the doctor thinks or says, he's going to have a very hard time ever getting me to take more than one new drug at a time. And moreover, I'm going to want to only add a single drug and live with it for a month or so to see how I change otherwise I won't know if I'm coming or going or why or what's causing it and that simply is bull shit. After all, when you complain about the side effects all they ever want to do it give you something else to add to the mess.
The thing that has me really pissed though is my pain medication prescription went AWOL last week so now my doctor is refusing to mail it in the future. Instead, I have to ride the bus for 4 hours to pick it up in person. I'm going to try and talk to him about this next time I'm in there, but clearly that isn't going to help much. I'm also desperately seeking alternatives.
Not much is happening otherwise since I'm struggling just to keep myself fed and dishes washed. I am too tired and too sore to try it today so I'm going to try and do some laundry tomorrow. That's pretty much what my life has been reduced to.
I'm watching quite a lot of movies though and am making an effort to get reviews back on the companion page ~ view . read . listen ~. Talk about a backblog!
Robin's fine though he's bored and would love to get out for a walk or some serious play. I do throw the ball around inside the apartment for him as much as possible and he gets plenty of attention, but I think he'd really rather chase kitties.
The only other thing is I made a slight change with my meds earlier in the month. I picked the acyclovir back up since I had been having some horrible sores around my mouth pretty much every other week since I stopped it. So far the sores seem to be gone but I've noticed that the sweat attacks have intensified and I seem to be sluffing off lots of skin. I especially notice the later after showers and it's mostly an annoyance since it just leaves me feeling less clean that I'd like.
However the upside is that since getting rid of all the meds that were messing with my head I no longer have those horrible dreams and hallucinations. None. I mean, they have completely disappeared. It's really strange and I'm not really clear which drug was actually causing them since I'm still taking the most likely candidate.
This has lead me back to the untold problem of taking many different medications -- the unknown, usually untested world of drug interaction side effects. Yes, they do test drugs before allowing them to be released to the general public and they record all these side effects but there is almost NO TESTING of side effects seen when the drugs are combined with other stuff. I think this is where much of the problem lay in my past -- I don't think any single drug was responsible for any of the side effects but they all combined in this horrible morass of chemically induced problems. Talk about being caught in a web...
Never again. I don't care what the doctor thinks or says, he's going to have a very hard time ever getting me to take more than one new drug at a time. And moreover, I'm going to want to only add a single drug and live with it for a month or so to see how I change otherwise I won't know if I'm coming or going or why or what's causing it and that simply is bull shit. After all, when you complain about the side effects all they ever want to do it give you something else to add to the mess.
posted by xj at 9:02 AM
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